Lichen Sclerosus
I. Definition:
Lichen sclerosus is a skin disease that occurs most often on
the genital (vulva) area of women. The involved areas are often itchy.
As the condition progresses bruising and pain may occur. Skin affected by
lichen sclerosus is usually white and sometimes there is a fine, crinkling
texture to it. If left untreated, lichen sclerosus can cause progressive
scarring. This can cause the labia minora (the inner lips of the vulva) to
disappear completely, the opening to the vagina to narrow, and scar tissue to
cover the clitoris. Lichen sclerosus does not affect other mucous
membranes and only 1 in 10 people have other areas of their skin develop lichen
sclerosus. Patients who have untreated disease have a slightly increased
risk of a skin cancer of the involved areas.
II. Causes:
- We do not know the cause of lichen sclerosus.
- Lichen sclerosus is not contagious. It is not
associated with any other disease except for rarely skin cancer as noted
above.
III. Treatment:
- There is now excellent treatment for lichen sclerosus.
A very high potency cortisone cream or ointment will normally return skin to
its original color and texture, although any scarring that may have occurred
will remain. There is a slight increase of trivial infections during
the first few months of treatment until the skin returns to normal,
especially in women who are postmenopausal or in girls who are prepuberal.
Some patients will develop an allergy to one of the components in the
cortisone ointment. Therefore, brief setbacks are common during the
first few months of therapy. You should not be discouraged, because
ultimately this disease responds well to treatment and produces no symptoms.
Although lichen sclerosus is not curable, it is controllable.
- After your skin has returned to normal, you will still need
to have a follow-up visit every 6-12 months. This is so any early skin
cancer can be found while it is a minor problem and so that if the lichen
sclerosus begins to recur, treatment can be restarted before symptoms occur.
- Birth control pills often thin vulvar skin and worsen
symptoms overall. Discontinuing them may improve symptoms.
- If any creams, lotions or ointments you use in the vulva
area sting or burn upon application, stop using them immediately. If
they are medications that were prescribed here, stop using them and call the
office.
- The vulvovaginal area is very prone to irritation.
This is an area that stays warm and damp and is subject to harsh conditions
such as exposure to urine, perspiration, pressure (as in sitting), friction
(as in walking and intercourse), and exposure to irritating substances (such
as soap). There are a number of things that you can do to decrease the
irritation in this area:
- Wear loose fitting clothes and consider wearing thigh high
hose instead of panty hose. Wear cotton underwear that
“breathes.”
- Do not use any soap on your vulva and wash no more
than once a day with clear water only using your fingers instead of a wash
cloth. Pat the area gently to dry.
- Do not use any douches, perfumes, feminine hygiene
sprays, commercial lubricants, or other substances on the vulva other than
those prescribed or suggested.
- Use lubrication if needed with intercourse, most women with
chronic vulvar symptoms do not find intercourse pleasurable and therefore do
not lubricate naturally. Vegetable oil is a good lubricant to use
because it has no alcohol or preservatives in it.
- Xylocaine jelly will often help to numb the area before
intercourse and make sexual activity more comfortable. This should be
applied liberally 15-20 minutes before intercourse. This medication
can also be used at other times when irritation or pain is at its worst.
- Panty liners and pads irritate some people.
Allergies to chemicals in the pads can occur and may not show up until
several days after use.
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